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NEWS
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#MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates!
We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.
Jul 223 min read
Severe ME Artists Project 2025
Learn more about this year’s project
Jul 104 min read
Press Release: UNC Closes its Long COVID Clinic – the Only One in the State
The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.
Jun 232 min read
Pillow Writers en Español
#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.
Jun 196 min read
Happy Juneteenth + Black Disabled Authors Reading List
In celebration of Juneteenth, we have put together a list of books by disabled Black authors.
Jun 182 min read
Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 113 min read
Millions Missing Scotland 2025 raises a red alert
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.
Jun 12 min read
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.
May 72 min read
Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
May 71 min read
Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 281 min read
Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 275 min read
#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.
Apr 232 min read
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.
Apr 214 min read
SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 116 min read
Why We’re Sending out an SOS this #MillionsMissing
On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.
Apr 82 min read
Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!
Apr 42 min read
Virtual Interview + Q&A with Stuart Murdoch
Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.
Apr 33 min read
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 22 min read
White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 272 min read
Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!
Mar 273 min read
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