When the SARS-CoV-2 pandemic began, disability advocates sounded the alarm: acute viral infection leads to chronic illness in a significant number of individuals. Dr. Fauci repeatedly warned of the risk patients would develop myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

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Like many other neurological diseases, up to 80% of cases of ME/CFS are initiated by infection. Several preliminary studies are now showing that nearly half of people with Long COVID have ME/CFS. 

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Infection-associated chronic illness is nothing new. Yet despite its high prevalence and severity, research and clinical care into ME/CFS lags behind the times. Our goal is to ensure that everyone can easily access the information they need to make the best possible decisions for the health of their families, patients, and for their own well-being.