
RESEARCH
Research into infection-associated diseases like ME/CFS has accelerated due to the pandemic, but there is also important research that preceded the pandemic, which informs ongoing scientific inquiry. Familiarize yourself with the foundational ME/CFS research below.
LEARN MORE ABOUT M.E. RESEARCH
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SUPPORTING RESEARCHERS
#MEAction supports research through collaborative research projects with institutions, hospitals, clinicians and researchers. We are involved in recruitment initiatives, and have run patient sourced research with the goal of improving care and treatments. This work increases the quality of our advocacy and activism, and directly affects the lives of people with ME.
#MEACTION RESEARCH INITIATIVES
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MEpedia
A crowd-sourced Wiki project and living literature review summarizing current research in ME/CFS and related fields. All contributors welcome! -
#MEAction patients and caregiver volunteers participate in a range of research efforts including the April 2019 NIH ME/CFS research conference.
MEpedia
The Chronic Illness Survey Adventure
#MEAction and Mayo Clinic Receive Grant
CONNECT WITH CONFERENCES & SCIENTIFIC ORGANIZATIONS AROUND THE WORLD
UNITED STATES
Organizations that may be of especial interest to researchers
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Patient Led Research Collaborative
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International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) – biannual conference in the United States
Research Groups
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The Chronic Fatigue Syndrome Research Center (CFSRC) at Stanford University
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The ME/CFS Initiative at Stanford University
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The Bateman Horne Center, Utah
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The Hanson Lab at Cornell University
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Institute for Neuro Immune Medicine | Nova Southeastern University
UNITED KINGDOM
Organizations & Conferences
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Invest in ME – organizes annual conference in London
EUROPE
Organizations, Conferences, and Research Groups
AUSTRALIA
Organizations & Conferences