top of page
An elderly man in a wheelchair leans over, holding the hand of a woman lying on her side in the grass. She wears sunglasses and headphones.

CAREGIVERS

Caring for people with ME, and caring for yourself, too.

Dr. Ron Davis leans over his son, Whitney Dafoe, as he buzzes his head. Whitney is lying on his side, in bed.

HOW DOES M.E. IMPACT CAREGIVERS?

Myalgic encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver or carer. Caring for someone with ME requires adaptibility, patience, commitment and compassion. We hope the resources below will help you better navigate the care of your loved one, your own self-care, and connect with others on a similar journey.

SUPPORT & ADVOCACY GROUPS

CAREGIVERS FACEBOOK SUPPORT GROUP

FIND A MEDICAL

PROVIDER

VOLUNTEER

MONTHLY CAREGIVER

SUPPORT CALL

MONTHLY PARTNER

CAREGIVER SUPPORT CALL

SIGN UP FOR

NEWSLETTER

ALL GROUPS

CAREGIVER RESOURCES

#MEAction has crowdsourced advice in the guide below from caregivers who care for both adults and children. We hope they will equip you to better navigate the long, convoluted journey of this disease. You can browse for more brochures, fact sheets, and other tools below.

FILMS, MUSIC & BOOKS ABOUT M.E.

ME IN THE NEWS

bottom of page